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Dataset
Federal Interagency Traumatic Brain Injury Research Informatics System
FITBIR will host data only from NIH-funded studies beginning August 24, 2026; the page also notes the end of data submissions from other organizations.
About Federal Interagency Traumatic Brain Injury Research Informatics System
The Federal Interagency Traumatic Brain Injury Research Informatics System (FITBIR) is a web-based data repository focused on traumatic brain injury (TBI) research, developed as a partnership between the U.S. National Institutes of Health (NIH) and Department of Defense (DoD). It hosts standardized TBI research datasets and associated resources to support the broader TBI research community.
Users can access shared TBI study data including demographics, outcome assessments, imaging and biomarker records, request data access as a qualified investigator, use pre-built user-ready forms aligned with FITBIR’s interagency Common Data Elements for TBI research, view summary data visualizations via the Advance Data Dashboard, and engage with other users through the public FITBIR Forum (login required to post content). The platform also provides support from a fully staffed operations team to help users get started, though new data submissions are only accepted for studies that have received programmatic approval.
Key features
- Hosts standardized TBI research datasets including demographics, outcomes, imaging and biomarkers
- Provides user-ready forms aligned with interagency TBI Common Data Elements
- Offers an Advance Data Dashboard for summary TBI data visualization
- Includes a public forum for user discussion (login required to post)
- Supports a two-tiered submission strategy for approved studies
- Certified as a Core Trust Seal repository for data reliability
Best for: It is most beneficial for traumatic brain injury researchers, study teams, and investigators conducting NIH or DoD-funded TBI research.
Good for
- Holds Core Trust Seal certification for trusted data hosting
- Uses standardized Common Data Elements to support consistent TBI research
- Provides a fully staffed operations team to assist users
- Includes a public forum to facilitate community discussion among TBI researchers
Watch out for
- Will only host NIH-funded study data from August 24, 2026 onward
- Accepts no new data submissions except for pre-approved studies
- Is under review for potential modification per Administration directives
Federal Interagency Traumatic Brain Injury Research Informatics System at a glance
- Official website
- fitbir.nih.gov
- Category
- Research & Data › Open Data & Datasets
- Type
- Dataset
- Platforms
- Web
- Language
- English
- Last checked
- Oct 5, 2026 · Online when checked
- Listed
- Oct 5, 2026
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Federal Interagency Traumatic Brain Injury Research Informatics System FAQ
What types of data are available in FITBIR?
FITBIR hosts TBI research data including demographics, outcome assessments, imaging records, and biomarker data from NIH and DoD-funded studies.
Who can submit new data to FITBIR?
New data submissions are only accepted for studies that have received programmatic approval for submission to the platform.
How can I access data stored in FITBIR?
Qualified researchers must request and obtain formal data access privileges to view shared datasets in the system.
Is FITBIR a trusted data repository?
FITBIR is certified as a Core Trust Seal Repository, meeting trusted open data repository standards.
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