The YODA Project advocates responsible sharing of clinical research data, open science, and research transparency.
Dataset
Infectious Diseases Data Observatory
IDDO supports responsible sharing and reuse of infectious disease research data through repositories and a network of scientific collaborators.
About Infectious Diseases Data Observatory
The Infectious Diseases Data Observatory pools individual participant data from multiple studies and standardises it to support reuse for infectious disease treatment and control. It curates and harmonises data to CDISC standards and makes the resulting datasets available to not-for-profit researchers worldwide.
It applies pseudo-anonymisation with privacy controls and data governance processes, and states that it shares pseudonymised rather than fully anonymised data. Its repository covers multiple diseases and themes and includes data from more than 70 countries.
Key features
- Pools individual participant data from multiple studies into standardised datasets
- Harmonises data to CDISC standards recognised by regulatory and medical bodies
- Pseudo-anonymises shared data under strict privacy controls
- Makes curated datasets available to not-for-profit researchers worldwide
- Supports collaborator network studying multiple infectious diseases and themes
- Provides data governance system for acknowledgement of data owners
Best for: Not-for-profit researchers studying infectious disease treatment and control who need pooled participant-level data.
Good for
- Standardised datasets harmonised to CDISC standards
- Datasets freely available to not-for-profit researchers worldwide
- Repository includes data from more than 70 countries with 2,300,000 participant records
Watch out for
- Shares pseudonymised rather than fully anonymised data
- Curated datasets are described as available to not-for-profit researchers, not all users
Infectious Diseases Data Observatory at a glance
- Official website
- iddo.org
- Category
- Research & Data › Health & Medical Data
- Type
- Dataset
- Platforms
- Web
- Language
- English
- Last checked
- Oct 5, 2026 · Online when checked
- Listed
- Oct 5, 2026
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Infectious Diseases Data Observatory FAQ
Who can use IDDO datasets?
The resulting standardised datasets are freely available to not-for-profit researchers worldwide.
How does IDDO handle privacy in shared data?
IDDO pseudo-anonymises data with strict privacy controls and uses governance systems because it provides pseudonymised rather than fully anonymised data.
What standards does IDDO use for harmonisation?
IDDO curates and harmonises individual participant data to CDISC standards recognised by international regulatory and medical bodies.
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