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Dataset
PRO-ACT
PRO-ACT provides access to anonymized records and clinical trial data from studies of amyotrophic lateral sclerosis.
About PRO-ACT
PRO-ACT is the Pooled Resource Open-Access ALS Clinical Trials Database, providing access to anonymized records and clinical trial data from amyotrophic lateral sclerosis studies. It lists 13,717 subject records described as fully anonymized from 44 Phase II/III trials with placebo and active treatment cohorts, including demographics, lab tests, medical and family history, clinical outcomes, and over 18 million longitudinal data points. The site shows Register and Log in options for access.
Key features
- Provides 13,717 fully anonymized subject records
- Covers 44 Phase II/III trials with placebo and active cohorts
- Includes demographics, lab tests, and clinical outcomes
- Includes medical and family history data
- Contains over 18 million longitudinal data points
Best for: Researchers and analysts who need pooled, anonymized ALS clinical trial records for study.
Good for
- Pooled data from 44 Phase II/III trials in one place
- Over 18 million longitudinal data points across 13,717 records
- Covers demographics, labs, history, and clinical outcomes
PRO-ACT at a glance
- Official website
- ncri1.partners.org/ProACT
- Category
- Research & Data › Health & Medical Data
- Type
- Dataset
- Platforms
- Web
- Language
- English
- Last checked
- Oct 5, 2026 · Online when checked
- Listed
- Oct 5, 2026
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PRO-ACT FAQ
What is PRO-ACT?
The Pooled Resource Open-Access ALS Clinical Trials Database with anonymized records and clinical trial data from ALS studies.
What types of data are included?
Demographics, lab tests, medical and family history, and clinical outcomes, with over 18 million longitudinal data points from 44 Phase II/III trials.
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